The Arachnoid Cyst Foundation
Contacts
Business description
A PROTOCOL THAT'S ALL!!! is my mantra. Those of us living with Arachnoid Cysts need advocacy and support which is where we can help.
We help people understand how their lives are going to change and what their life is going to mean to them. We are fighting for the right to be seen and heard so doctors don't fight them but work with them. I am one of the leaders in research for this disease and I feel that this is a long term Central Nervous System systemic auto immune degenerative disease with no known cure, very little treatment and not enough research. Action has to be taken to fight the ignorance of doctors because literally "it's all in your head" but the symptoms are real. The pain is real. The pressure is real. And families are torn apart because there is not enough information to assist them as their children and loved one ages. Please HELP ME in our struggle to establish a protocol.
General information
- Government, Non-Profit and Other Public Sector Social Services, NEC Non-Profit Organizations
Estimated number of employees: | 2 to 4 | |
City / suburb: | Burbank, CA | |
County: | Los Angeles |
Patient Advocacy
Is this your business? Claim this profile to get thousands of free views!
QR code with The Arachnoid Cyst Foundation contacts
Reviews
Be the first to write a review about your experience with the company.
More details about this business
Or try our search form or quick navigation by category and location
Cellular Telephones Service and Repairs
Car Financing
Photocopy Machines