The Barth Syndrome Foundation
Contacts
Business description
Saving lives through education, advances in treatment, and finding a cure for Barth syndrome.
The Barth Syndrome Foundation (BSF) and its affiliates are a group of international non-profit organizations that provide information, resources and services for healthcare professionals and families worldwide. Advising the group is a world-class Scientific and Medical Advisory Board (SMAB), comprised of clinicians and scientists who are leading experts in Barth syndrome.The BSF website (www.barthsyndrome.org) contains the most up-to-date educational materials and research findings, including a comprehensive on-line library which serves both the medical community and affected families.Resources: Research Grant Program; Barth Syndrome Registry & Repository; FACT Sheets; Conference Video DVDs; Barth Syndrome Journal; Healthcare Educational Brochure; Barth Syndrome Bibliography
General information
- Government, Non-Profit and Other Public Sector Social Services, NEC Non-Profit Organizations
Estimated number of employees: | 2 to 4 | |
City / suburb: | Larchmont, NY | |
County: | Westchester |
research services, education, family & community, Awareness
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